Evidence-Based Interventions to Reduce Stigma and Enhance Quality of Life for People Living with Epilepsy in Shiwang’andu District, Zambia

Authors

  • Tabitha Sampa Cavendish University, Zambia Author
  • Priscilla Munkombwe Lesa Cavendish University, Zambia Author
  • Elizabeth Zyambo Cavendish University, Zambia Author

DOI:

https://doi.org/10.59413/ajocs/v6.i4.21

Keywords:

Epilepsy, Stigma, quality of life, community education, mobile clinics, anti-discrimination policies, Shiwang’andu, Zambia

Abstract

This study proposes evidence-based interventions to mitigate stigma and improve the quality of life (QoL) for people living with epilepsy (PLWE) in Shiwang’andu District, Zambia, a rural area where cultural misconceptions exacerbate discrimination. Using a mixed-methods case study approach, guided by Goffman’s Theory of Social Stigma and Link and Phelan’s Stigma Process Model, data were collected from 62 participants via questionnaires and 18 semi-structured interviews. Findings indicate strong support for community education programs (88.7%), mobile epilepsy clinics (80.6%), and anti-discrimination policies (77.4%) to address stigma and enhance QoL. These interventions target cultural beliefs, negative community attitudes, and healthcare access barriers, aligning with global and regional strategies. The study contributes to Sustainable Development Goals 3 (Good Health and Well-Being) and 10 (Reduced Inequalities), offering a blueprint for culturally sensitive interventions to foster inclusion and improve well-being for PLWE in rural Zambia. 

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References

Anguzu, R. et al. (2021) ‘Household poverty, schooling, stigma and quality of life in adolescents with epilepsy in rural Uganda’, Epilepsy & Behavior, 114.

Annick-Mélanie, M. et al. (2023) ‘Beliefs and attitudes of traditional healers regarding epilepsy in Cameroon’, Epilepsy and Behavior, 145.

Aranda, A.M. et al. (2023) ‘Standing on the Shoulders of Goffman: Advancing a Relational Research Agenda on Stigma’, Business and Society, 62(7), pp. 1339–1377.

Baimyrzaeva, M. (2018) ‘Beginners’ Guide for Applied Research Process: What Is It, and Why and How to Do It?’, University of Central Asia: Graduate School of Development., 4, pp. 1–46.

Bhwana, D. et al. (2025) ‘Community-based epilepsy care in an onchocerciasis-endemic area: A 3-year cohort study in Mahenge, Tanzania’, Epilepsia, 66(3), pp. 739–752.

Chakraborty, P. et al. (2021) ‘Stigma reduction interventions for epilepsy: A systematized literature review’, Epilepsy and Behavior, 114.

Dusabimana, A. et al. (2021) ‘Community perceptions and attitudes regarding epilepsy and disease cost after implementation of a community-based epilepsy treatment program in onchocerciasis- endemic communities in the Democratic Republic of Congo’, Epilepsy and Behavior, 116, p. 107773.

Herrmann, L.K. et al. (2016) ‘Epilepsy misconceptions and stigma reduction: Current status in Western countries’, Epilepsy and Behavior, 60, pp. 165–173.

Kpobi, L., Swartz, L. and Keikelame, M.J. (2018) ‘Ghanaian traditional and faith healers’ explanatory models for epilepsy’, Epilepsy and Behavior, 84, pp. 88–92. 6.

Link, B.G. (2023) ‘On the history and growth of the stigma concept: A reflection on the positioning of social relationships in stigma research’, Journal of Social Issues, 79(1), pp. 528–535.

Mambo, R. et al. (2024) ‘Gaps in treatment of epileptic seizures in a Zambian rural area’, Neurological Sciences, 45(9).

Misra, S.N. et al. (2022) ‘Significant improvements in SEIzure interVAL (time between seizure clusters) across time in patients treated with diazepam nasal spray as intermittent rescue therapy for seizure clusters’, Epilepsia, 63(10), pp. 2684–2693.

Molla, A. et al. (2021) ‘Knowledge and attitude towards epilepsy among rural residents in southern Ethiopia: a cross-sectional study’, BMC Public Health, 21(1), pp. 1–9.

Mweemba, D., Mandyata, J. and Muzata, K.K. (2021) ‘Perceived factors affecting The management of epileptic attacks among learners in a selected School in livingstone – zambia’, Isagoge - Journal of Humanities and Social Sciences, 1(1).

Nkole, K.L. et al. (2020) ‘Ketogenic diet in Zambia: Managing drug-resistant epilepsy in a low and middle income country’, Epilepsy and Behavior Reports, 14.

Patel, A.A. et al. (2019) ‘Improving paediatric epilepsy management at the first level of care: A pilot education intervention for clinical officers in Zambia’, BMJ Open, 9(7).

Patel, A.A. et al. (2022) ‘Identifying biomarkers for epilepsy after cerebral malaria in Zambian children: rationale and design of a prospective observational study’, BMJ Open, 12(7). 8.

Singh, G. and Gupta, M. (2024) ‘Status epilepticus: Challenges in rural and remote locations in low- and low-middle income countries’, Epilepsy and Behavior, 161.

WHO (2024) Epilepsy. Available at: https://www.who.int/news-room/fact- sheets/detail/epilepsy?utm_source=chatgpt.com (Accessed: 12 July 2025).

World Health Organization (2019) ‘Global burden of epilepsy’, Epilepsy: a public health imperative, pp. 9–17.

Zamstats (2022) Zambia 2022 Census. Available at: https://www.zamstats.gov.zm/wp- content/uploads/2023/12/2022-Census-of-Population-and-Housing-Preliminary.pdf (Accessed: 12 July 2025).

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Published

2025-08-23

How to Cite

Sampa, T., Lesa, P. M. ., & Zyambo, E. . (2025). Evidence-Based Interventions to Reduce Stigma and Enhance Quality of Life for People Living with Epilepsy in Shiwang’andu District, Zambia. African Journal of Commercial Studies, 6(4), 218-223. https://doi.org/10.59413/ajocs/v6.i4.21

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